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PANS PANDAS UK

PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain.

PANS and PANDAS are a set of conditions which result in an inflammation of the brain causing a variety of neuro-psychiatric conditions such as OCD, tics and eating restrictions.  These conditions are often misdiagnosed or blamed simply on bad behaviour and poor parenting.  

PANS PANDAS UK is a charity which was established by a dedicated group of parents with children who are affected by these conditions.  Determined to make a difference to the way these conditions are understood by the medical profession and the general public, the charity was registered in May 2018. 

The charity was originally created in order to raise awareness and understanding of these conditions amongst the general public and medical professionals.  

All of Plymouth covered. We provide support via our Facebook group PANS PANDAS UK.

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.


PANS Diagnostic Criteria​

An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD)* or severely restricted food intake** along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder.​

  • Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes)
  • Tics
  • Emotional lability and/or Depression
  • Irritability, Aggression, and/or Severely Oppositional Behaviours
  • Behavioural (Developmental) Regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety).
  • Sudden Deterioration in School Performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills)
  • Motor or Sensory Abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture).
  • Insomnia and/or Sleep disturbances
  • Enuresis and/or Urinary frequency​
  • Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of Psychosis and/or Hallucinations

PANDAS Diagnostic Criteria​

Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics.  PANDAS symptoms can then appear to wax and wane with the child experiencing flares periodically, following illness or periods of stress.  The child is usually between the ages of 3 and puberty when first symptoms occur and usually appear following a streptococcal infection such as Sinusitus, Ear infections or Scarlet Fever.  In some cases children can carry the streptococcus bacteria without showing signs of illness.

Whilst it is not a diagnostic requirement, in addition to OCD* and/or tics, children may also experience co-morbid symptoms similar to those seen in PANS.​

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Price: Free at point of access, supported through the PANS/PANDAS UK Charity.
Based: Nationally based
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
  • 4 to 5 years old
  • 5 to 11 years old
  • 12 to 16 years old
  • 17 to 25 years old
  • Brain injuries

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